The next day Theo and Norah came with Grandma to come see me. I was kind of hoping this would have been the pic with all three of my children in the hospital bed. It was so weird being on the postpartum floor with no baby. But, that evening I did get to hold Charlie for the first time.
Eventually he came off the c-pap and moved onto a small nasal canula to keep the airway open. After several tests they diagnosed him with a paralyzed vocal chord which was obstructing his airway.
The ENT was hoping that his vocal chord would start working in the next couple of weeks so we waited.
It didn't start working in the time frame they allowed so they put in a trach so he could go home and breath safely.
We had to let the trach site heal and then he had to learn how to eat. Luckily he didn't have to have a g-tube, which most trach babies have. After 5 weeks of being in the NICU we got to take him home and it was the first time Norah and Theo got to see him. Norah still thought the baby was in my stomach until he came home. Here he is not minding the trach so much.
After a month of being home we went to see the ENT. At our doctor visit, he put a scope down Charlie's nose and we saw that his vocal chord was working. It was amazing. Our prayers had been answered and your prayers, too. About a month after the ENT visit we were able to go back to the hospital for about a week and get the trach removed. Now he just wears a bandaid.
We are so very thankful for all the many prayers and help that came our way. We had visitors, e-mails, phone calls (even though I wasn't always good at returning them), packages, letters, rides for my kids, playmates, food, and much more. So many people were so willing to help us out. I can't express how grateful I am to you all.